In May 2015, the chief executives of the 3 leading hypopara organisations travelled to Florence in Italy to meet for the very first time after working together online for ten years. It was a difficult journey for them all but an emotional and historic meeting. The occasion was the first International Hypoparathyroidism conference, held in Florence, where endocrinologists from around the world shared their findings and worked together to draw up recommendations for the first ever hypoparathyroidism guidelines. Recommendations were also presented a week later in Dublin at the European Congress of Endocrinology. Patient organisations have been campaigning for guidelines for many years so this step, along with the long awaited approval of Natpara by the FDA in January 2015, make this a very remarkable year indeed.
Hypopara organisations around the world will be raising awareness in different ways today. In the USA, they are holding their annual hypopara conference; in the UK they are organising a global social media T shirt campaign to highlight the difficulties of living with this rare condition. Hypopara UK and the Nordic Hypopara Organisation both celebrate their tenth anniversaries later this year.